EBMT NEWSLETTER | November 2017 | Volume 59 - Issue 5

Important dates

9th EBMT Nurses International Study Day - 1st Nursing Research Day - 48th EBMT NAP UK study day
National Groups Meeting
The EBMT Nurses Group is on Twitter
Updated VOD Learning Programme
Save the dates!
Contact us!

9th EBMT Nurses International Study Day
1st Nursing Research Day
48th EBMT NAP UK study day

5-6 October 2017 in Manchester, UK

As usual for our UK EBMT NAP meeting we move to a different city each year. This year we visited Manchester, a vibrant if not slightly wet city in the North of England. This year for the first time we also had a combined International EBMT Meeting and the inaugural Research Nursing Meeting. In a similar vein, the International EBMT nursing study day moves from country to country each year. Combining our UK meeting with our colleagues from the rest of Europe aimed to make this an event not to be missed and indeed this was the case with a fantastic turnout and engaging speakers.
To make the meeting even more attractive we held our first Research nursing day. This was a day that was intended to introduce nurses who are naïve to the whole research process, what research is and how research is performed, a tool kit to increase knowledge and confidence.
The theme for the Nurses Study Day was Past, Present and Future, Celebrating 60 years of HSCT. It all started with Dr Jennifer Byrne who gave an overview of the last 60 years and took a look into the future for transplantation. Dr Eileen Parry proceeded to discuss skin complications and how chemotherapy and radiotherapy cause all of our patient’s cutaneous problems. Some excellent hints and tips on application of creams and general skin care.
Following a tea break Dr Jane Keep told us all we needed to look after ourselves more. Essentially, we need to make time and space to enable us to go to the toilet! If you are not going to the toilet it means you are not drinking enough. This is an obvious statement but one that led to some lively debate at lunch and a large toilet queue.
Radiotherapy in a nut shell was delivered with aplomb by Dr Ed Smith followed by an ancient Irish fable (500 years ago a man with a head injury was revived with bone marrow) of transplant from Dr Dan Wiseman. Dr Wiseman updated us on new AML treatments and told us where and how it all began. A great overview of the past which informs the way we still treat patients with leukaemia today. 

Next up was a double act of Prof Rob Wynn and Helen Webster who delivered VOD from a nursing and medic’s perspective. The show stopper was in the form of Prof Radford who never fails to perform and gave a potted history of lymphoma.
The day was rounded off by a Jazz supported meal at The Albert Square Chop House. A thoroughly good day.

Friday changed focus with research being the name of the game. This was the first foray into a different environment for the EBMT NG. Research remains a topic that many nurses still find difficult to relate to their own practice. The hopes from the day were to demystify this often confusing subject.
We were lucky enough to have both the winner of the best oral presentation and best piece of nursing research attend to present their work. Annika Kisch spoke about her grounded theory approach to sibling stem cell donation. Whilst, Fabienne Colledani described how a nurse can take an idea and turn it into a project and presented the nursing evaluation and care of patients with GI GvHD. 

Marta Canesi discussed the challenges that would be faced when starting up any project. How to develop the idea, where to start and who to go to for help and assistance?  
Sadly due to a cancelled flight The Critical Appraisal Company were unable to attend and Dr Jacqui Stringer and her research committee stepped into the breach and gave an overview of how to critically read a piece of research and understand statistics by taking apart one of their own pieces of work. 
Corien Eeltink completed the day by showing us how the final publication should look. 
Plans are already being made for 2018 with the International EBMT Meeting to be held in Montpellier facilitated by Caroline Bonpoint. The EBMT UK NAP meeting will go ahead in Cardiff 2018, dates for both of these events will be confirmed soon.
We are looking forward to seeing some of you there.

National Groups Meeting

7th October 2017 in Manchester, UK

Following the success of the two day educational meeting in Manchester on 5th and 6th October 2017 the National Chairs met of 7th October at the same venue, the Crowne Plaza Hotel. This provided a great opportunity for the National Chairs to attend the regular educational sessions and also provide a valuable update with respect their own National activity.

We had great representation with National Chairs from 9 countries giving feedback. The UK Group have recently updated their website and have added a new on-line e-learning program on VOD. This is FREE open access, all it requires is a user name and password to be created. Once completed a certificate is generated as well as and CPD points.
Seckin Erdal from Turkey informed the participants about on-going work towards a more structured national group. In the two years since the Turkish National Group was formed they have held nine national meetings with more than 500 participants, a great effort. Later in  October they had a National group Study day which also hosted an Apheresis conference.
Britta Gehl from Switzerland presented the achievements of the Swiss Group in the absence of their National chair Alexandra Dziuban, who is on maternity leave. Despite difficulties (there are 3 different national languages), the group is working together on many projects. In January Barbara Piccolruaz, Swiss national group vice chair, will be co-chairing the HNHCP Educational conference in Zurich together with Erik Aerts. Britta and her hospital team are working on an interesting protocol to recognize and treat sepsis early. Britta has been invited to submit preliminary results in abstract for the Lisbon 2018 Annual conference.
Polona Klanscek from Slovenia attended. This is a smaller country at the start of their transplant journey and currently have one transplant centre. Although small, they have initiated many new projects, sterile antibiotics dilution, PICC team organization, nutrition management and many more. The team is also in preparation for JACIE accreditation so is planning to visit another centre for data management and quality management training.
Maaike de Ruijter National group chair for Netherlands have made huge progress in the last few years. There are more nurses with Master’s degrees in the Netherlands and these nurses are becoming more focused on research with the aim to publish 2 articles per year. They also aim to produce a newsletter and material for patient information. They have a rolling educational Project and supply FREE master classes. Maaike is keen to organise the 2019 International Study and Research Day in Amsterdam, together with National Chairs meeting. A good piece of forward planning for our group.
Martine Heylens from Belgium also deals in 2 national languages, and as such this can lead to difficulties in the structure of one group to address everyones needs, atough task but one which Martine relishes. There are 12 active nurse members in 15 transplant centres across Belgium. The group is working on website development. The aim is for the group to present a poster in Frankfurt at the Annual conference 2019.
Petra Augustin from Austria described the well working National group that has been developing since 2007. There are now 10 well established centres. This year was the 7th national study day and was focussed on nutrition and VOD learning modules.
Caroline Bompoint the French national chair informed us that they now have a larger group with nurses from 25 centres across France. This includes 2 dieticians in the team. Other European French speaking areas are interested to increase the collaboration with the Group and are in discussion. Caroline has organised ‘Highlight Meetings’ that showcase presentations from the annual meetings. Caroline has volunteered to hold the next International EBMT education and Research meeting 2018 as well as hosting the National Chairs meeting. This will be held in Montpellier, the exact date is to be confirmed in the new year.
Antonio Magaro from the Italian Group ’GITMO’ is a well-established group now in its tenth year of collaboration with EBMT. The NG collaborate with medics on new initiatives like ‘Gitmo Tweet’, where expert nurses highlight nurse abstracts on a general platform. Many research projects are on-going as well as ‘GITMO 1000 miles’ an educational project which sees educational nurses courses moving to local hospitals
Ariadna Domenech and Francisco Marquez represented the current 2 National groups that exist within Spain. Ariadna presented 10 years of achievements of the National Group. The website is well established with a National meeting held in Vigo 2016 which was a great success.
Francisco presented GETH, officially established in 2016 but already a very active group with many activities on-going. This group is officially recognized by the Spanish Transplant Group and they are working on the organization of their Annual Meeting. Both groups are in discussion to amalgamate over the next year.

The EBMT Nurses Group is on Twitter

The EBMT Nurse Group twitter account went live late September 2017. Up to now, we have 42 followers and growing. Follow us now for instant updates on what’s going on in the world of nursing: https://twitter.com/TheEBMT_Nurses

Updated Veno-Occlusive Disease (VOD) Learning Programme

The nurse’s essential role

In order to be able to recognise signs of VOD and appropriately care for and manage patients with VOD we launched the educational tool in 2014. This updated version has been developed with consideration of the relevant national and international guidelines regarding the diagnosis and treatment of VOD, including the recently revised EBMT diagnosis and severity grading criteria for VOD in adults and new information on risk factors for VOD.We know that as nurses we can make a difference in the outcome for patients with acute complications from haematopoietic stem cell transplantation (HSCT). VOD is one potentially life-threatening complication where treatment is available but where identification and diagnosis can be difficult. The tool is designed for self-learning as well as for you to help educate colleagues on active management of VOD. It will give you the knowledge about VOD that will enable you to raise concern and alert the other HSCT team members ultimately improving patient outcomes.

What’s new?

We are delighted to announce that you can now download the updated VOD learning programme in both Spanish and French. 

Visit the EBMT website to learn more about the VOD learning programme. Click HERE

Save the dates!

34th Meeting of the Nurses Group

The scientific programme is online. You can plan your participation to your favorite sessions by signing in or creating an account. 

Nurses topics

Care of the carer
Complementary therapies
Donor issues
Ethical issues
Impact of new therapies on patient care
Information and education
Outpatient developments
Palliative care
Patient safety
Psycho-social issues
Protective care
Quality of life
Standards of care
Survivor ship
Symptoms management

Contact us!

If you have any questions or suggestions please don’t hesitate to contact us:
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