EBMT NEWSLETTER | May 2018 | EBMT 2018 Post Congress Bulletin

EBMT
Important dates
Content:

Textbook for Nurses
34th Meeting of the Nurses Group
12th Patient, Family & Donor Day
New Educational Apps
Awards
Watch our interviews
New committee members
Outgoing members
Apply for Grants
The EBMT Nurses Group collaborative project in India
Upcoming educational events: save the dates!



Textbook for Nurses



Release of the first textbook on blood and marrow transplantation for Nurses

This Title is available in Open Access and can also be purchased in print (hardcover).
It has 47k downloads.

Click HERE to read our press release
For more information, visit our website







34th Meeting of the Nurses Group

Nurses Educational Day

The skies were blue for most the Nurses Group Annual Meeting this year in Lisbon, however we did have to get our umbrellas out on a dew occasions. It was an amazing meeting with nursing attendance up by 20% with over 570 nurses in attendance. We had a number of interesting ‘How do I?’ sessions this year in Lisbon.
Our 'How do I?' Session included a very interesting ‘How do I: What does it mean?’, there was an excellent discussion on pertinent issues such as pulmonary GVHD and cardiac issues in the management of BMT patients.
The “How do I?” was about “How do I manage...?” session was focused about the multi-resistant bacteria, oral complication, managing of pain and quality of sleep.
The joint nurses and physicians workshop focused on fertility and sexuality this year. WE had presentation discussing fertility preservation in both adults and children alongside an excellent presentation from Corien Edltink (Netherlands) on the management of sexual dysfunction.
There was an excellent session that focused on emerging therapies. We had interesting presentations on innovation including faecal transplantation, Delta one T cells as a new cellular immunotherapy and of course CAR-T cells. The future looks bright for our patient with this innovation; we will continue to focus on the nursing aspects of these therapies going forward.
We were delighted to host a whole session dedicated to the JACIE’. During this session we had presentations on how to identify and incident and how to report it and performing a root cause analysis. There was a great presentation on ‘Finding our way back from a serious incident’

Alongside the traditional Nurse Scientific Program, this year we also had a number of satellite symposia covering the crucial role of the nurse in averting the catastrophic course of severe VOD and QOL in acute GvHD patients.

EBMT TV spoke with nurses from across Europe, who share their highlights from the EBMT programme. 



John Murray discusses the Nurses programme including an Educational Day hosted on Sunday and the newly released, open access EBMT Nurses Textbook.



12th Patient, Family & Donor Day

On Saturday March 17, EBMT hosted more than 160 patients, donors, family members and special guests to hear from experts in the field, patient advocates, exchange experiences and to learn from one another. There were presentations by the Portuguese, Spanish and Brazilian Donor Registries and by family related and unrelated donors on the meaning of being a donor. The World Network for Blood and Marrow Transplantation (WBMT), represented by A. Waldman and M. Bitan, was also present and gave a review of its activities. Highlights included a live guitar performance by a patient, João Lopes, and Francisco Palma. Additionally, several patients came to showcase their artwork and books they’ve written. Many patients say that expressing themselves creatively is an excellent way to give meaning to their rare experiences.



Also Saturday saw the first sitting of the new EBMT Patient, Family and Donor Committee. The Committee is composed of patient advocates of EU patient organisations representing patients with haematological diseases, and national patient associations as well as a representative of the EBMT Nurses Group from the country where the Annual Meeting is taking place to participate in the organisation of the PFD Day. For more information, please visit the website.

New Educational Apps

The EBMT recently launched two new education Apps: "eGvHD" and "SOS-VOD" Apps.

Click HERE to read our press release
For more information, visit our website




Awards

Distinguished Merit Award to Jacqui Stringer (United Kingdom)

Dr Jacqui Stringer PhD, BSc, RGN, MIFPA, was awarded the Distinguished Merit Award for 2018. Jacqui is clinical lead for the tissue viability and complementary health & wellbeing services at The Christie NHS Trust in the UK. Her clinical focus is the management of patients with complex physiological and / or psychological needs with a specific interest in Haematology patients. The role includes maintaining a clinical case load where standard licensed medications are used in conjunction with off-license essential oil preparations to facilitate maximum healing / symptom support. Leading on research relating to symptom management is central to the role.

Jacqui started the complimentary service in 1997 and completed her PhD in 2005. The complimentary team has expanded dramatically over the past 20 years and now has more than 30 people offering massage, reflexology, aromatherapy, acupuncture, and hypnotherapy and relaxation techniques as well as having a clinical input caring for patients with wounds. Jacqui has been instrumental in the team advising on the care of the patient with chronic skin GvHD. This is a service that is embedded within the department and is not seen as additional care but as integral to excellent care, we really could not practice without her. Jacqui continues to explore opportunities and is in the process of setting up a cross Atlantic questionnaire about how best to treat patients with chronic cutaneous GvHD. This I believe is part of her ‘blue sky vision’ where we could develop guidelines for practice and go on to develop collaborative research projects for our patients benefit.   Jacqui has also been an extremely active member of EBMT and is the chair of The Nurses Research Group, but she steps down this year. Whilst in post as chair, the research committee has established itself with a number of projects, presentations and publications. Under Jacqui’s supervision and guidance they have produced guidelines on the management of oral mucositis, adherence to oral medication and care of CVC’s. Current projects are exploring the management of related donors, ATG administration and sexuality issues and nutrition to name a few. Jacqui’s goal is to increase all of our personal awareness in the field of nursing research. By doing this we will become engaged in the process and try something ourselves. This can only benefit nursing knowledge and ultimately improve patient care.

John Murray
Nurses Group President

Best Oral Presentation

This year’s best oral presentation session was a full house. The top 5 oral abstracts were selected and the standard was high! 
The session kicked off with a presentation from Midori Nakagaki discussing hyper hydration for High dose Melphalan autologous transplants.
Angela Leather, a transplant co-ordinator from the Christie in Manchester followed, giving an insight into the challenges of dealing with sudden changes in the donor circumstances. A joint presentation from Hayley Leonard, Lead Nurse in the Anthony Nolan and Dr Julie Denning, a health psychologist and senior manager from Working Towards Wellbeing on the very important topic of return to work post transplant, they presented a pilot study of supporting these patients. We had a presentation from Rose Ellard, Specialist Research Nurse from Kings College Hospital in London and the topic of the congress- CAR-T and the nursing education in dealing with cytokine release syndrome.
The winner of the best oral presentation was Joanne Ellis from Royal Manchester Children’s Hospital. Jo gave a heartfelt presentation on her work surrounding her unit experience following the implementation of a teaching tool for parents of children requiring home parenteral nutrition. Jos presentation including testimonies from both staff and parents and really was a deserving winner.

To read more about the Nurses Awards, please visit the Awards news

To view the abstracts and presentations, please view the EBMT 2018 scientific programme planner 

Watch more interviews 


New committee members

Aleksandra Babic
Account Officer
(Assignment temporarily)
Julia Ruíz Pato
New Member of the Global Educational Committee
Quality manager
JACIE Inspector
Board of Spanish Nurses Group
Paediatric Nurse at Niño Jesús Childrens´Hospital Madrid, Spain.
 

Outgoing members

Merja Stenvall
Account Officer
Jacqui Stringer
Chair Research Committee
Letizia Galgano
Scientific Committee Member



Apply for Grants

There is an exciting opportunity to apply for our annual scholarships with the EBMT Nurses Group. To apply for any of the following scholarships, please send a short motivation letter (max 250 words) and CV to michelle.kenyon@nhs.net along with a CV.
  1. The Educational Scholarship
  2. The Exchange Grant
  3. The Travel Grant
  4. Outreach Nurse Annual Meeting Grant
For more information, visit our website.

Global initiative: the EBMT Nurses Group collaborative project in India

The EBMT NG started a collaborative educational training project in India, which is now to be expanded following its success. The project is introduced by Aleksandra Babic, past President of the EBMT NG and current Chairperson of the NG Global Education Committee, from the Oncology Institute of Southern Switzerland, Bellinzona, Switzerland. Meera Achrekar of Tata Memorial Centre, Mumbai, India, explains the aims of the project, highlighting the importance of this initiative and her continued excitement moving forwards. This video was recorded at the EBMT 2018 Annual Meeting, held in Lisbon, Portugal.



Upcoming educational events: save the dates!

11th PDWP, IDWP, IEWP and Paediatric Nurse Group Meeting

7-9 June 2018 Verona, Italy

10th EBMT Nurses International Study Day & 2nd Nurses Research Study Day

4-5 October 2018 Montpellier, France

Contact us!

If you have any questions or suggestions please don’t hesitate to contact us:

MORE ABOUT THE NURSES GROUP: VISIT OUR WEBSITE

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