EBMT NEWSLETTER | June 2016 | Volume 52 - Issue 3

EBMT
Important dates

The 10th Scientific Meeting of the EBMT Paediatric Diseases Working Party conducted as joint meeting with the EBMT Inborn Errors Working Party and the 5th Meeting of the EBMT Paediatric Nurses

May 26 -28 2016 in Island of Rhodes, Greece

37 nurses from Germany, Austria, Finland, Denmark, France, Israel, the Netherland, Italy, Turkey and Spain attended the meeting. It was a great opportunity to share experiences, learn, share and talk in open discussion during this two-day forum.

The scientific program designed for the nurses focused on important topics such as infections in neutropenic patients, viral infections and isolation. Nursing research, patients’ safety, pain and palliative care were also discussed. Joint sessions focused on the latest developments on cellular therapies, in the treatment of children and teenagers with leukemia and GvHD.

Five nurses from Spain, Turkey, and Austria obtained a grant from the Paediatric Diseases Working Party. You can read below their reports on the meeting.

After a very productive and intense working day, we had the chance to visit the Medieval Town of Rhodes and enjoy excellent food with our fellow colleagues.

Paediatric Nurses Committee




Five successful applicants to the travel grant are presenting their experiences of their participation in the 5th Meeting of the EBMT Paediatric Nurses.

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Verónica Fernández, Hospital Vall d´Hebron, Barcelona, Spain

Attending the EBMT Paediatric Nurses Meeting proved an excellent platform for widening knowledge and sharing experiences in order to provide the best care for our young patients. Nurses from different countries took part and transformed the conference into a dynamic meeting of minds.

Every year new developments and improvements in treatments are available and nursing is able to adopt new strategies in care. For a paediatric nurse has to be done, moreover, in as smooth, tender and humorous way as possible.

The presentation that really caught the attention of the public was that of the patient’s experience. Now a grown woman, she explained how the disease smashed her Olympic dreams, how hard was all the treatment and suffering which was brought to her family. But she has overcome all obstacles (including maternity) with the help of her family and all the professionals, placing emphasis on the nursing team, who attended her.

Other topics discussed were protective isolation, infection, apheresis, nutrition, pain management and palliative care. The comments from the audience threw up a big challenge: the standardized practice across the countries. The first step would be the future project of the EBMT Nurses Group: a handbook containing the main directions for nurses’ daily practice. As a nurse, I believe the completion of this project will provide a unique opportunity for leadership in management information and education. Evidence based practice and excellent care attention should be worldwide and the Internet will be the instrument that allows us to achieve this.

Last but not least, spotlighting the importance of nursing research that will help understand the transition we are living in medicine. More patients are undergoing cell therapy and nursing care must have carried out safely, with the highest quality and human and affectionate treatment of the patient. The joint session with physicians provided a wide view of new developments in cellular therapies.

Our young patients are growing in numbers, and new challenges are emerging, paediatric nurses are willing to get involved in taking new responsibilities: management of late effects, follow-up care and improvement the patient’s quality of life.

I would like to express my appreciation and wish to thank the EBMT NG for the opportunity of attending the EBMT Paediatric Nurses Meeting, a place to share knowledge, experiences and backing networking in order to provide the best nursing care to our young patients.

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Maria Pastor, Hospital del Niño Jesús, Madrid, Spain

Every time one leaves his home country and ventures to an experience abroad, one fears to find all sorts of difficulties. Nevertheless, I can gladly say this was not the case for me. This has been my very first international conference, and I can say it has really been an outstanding experience, both professionally and personally. Finding out there are so many fields to explore and learn about in our profession, and so many professionals willing to show and teach their advances and share their personal experiences, I dare say all that has really helped me improve in my daily work life. Discovering that in the same job things can be carried out in so many distinct manners is certainly enriching. This eye opening experience certainly helped to broaden my view of the nursing profession, and ultimately improve the care I provide to my patients. Last but not least, I would like to thank the organization, as all of this would not have been possible if it wasn't for them. Finally, I can definitely say I will surely attend the next conference.

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Maria Pilar Seguí, Hospital Universitario y Politécnico La FE, Valencia, Spain

The last days in Rhodes have been an incredible experience, which has given me the opportunity to increase the knowledge about techniques, procedures, care and therapies that are used in paediatric transplant.
 
In addition, nurses from various countries gathered for this occasion, offering us a panoramic view of the nursing transplantation in Europe and around the world.
 
It has also meant an invitation to research. As young professionals, we’ve had this feeling that work and research are beyond our possibilities. But these days I have seen that this feeling is just a hoax. The Health Sciences, specifically nursing, moves, research and innovates; and this was also the message of this meeting.
 
In summary, it has been a very motivating experience. Thanks to the Committee for giving me the scholarship and allowing me to attend this meeting.

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Medine Yilmaz, Izmir Katip Celebi University, Izmir, Turkey

The organizing committee was very hospitable on this historic island. The meeting was well organized and very much in demand. Eugenia Trigoso was warm as well as being a leader. A total 37 paediatric nurses participated in the meeting. My colleagues had shown interest in this meeting just like the other colleagues from various European countries. This participation was an important step towards a standard nursing care and interventions in different BMT centers.
 
Sharing experience during joint sessions was also valuable.  The session on “Children getting older after transplant: problems and their solutions” was very useful and increased awareness. During the meeting, attractive educational sessions were organized for nurses. Of these sessions, especially the ones, titled “Patient safety, palliative care services at the BMT centers in Europe, Apheresis and ECP, Apheresis in small body weight, the children’s rights in hospital”, were very useful for me, since these topics gave me good clues.
 
Here are some take-home messages from the meeting:
  • JACIE is very important for nursing care standardization,
  • Safety of patient studies were limited in BMT,
  • DMSO is still one of the main causes of severity complications,
  • Right dose to right person is substantial to prevent toxicity,
  • Suggestions for a healthy lifestyle and risk assessment counselling should be offered to cancer survivor children.
Thank you so much for this invitation and the well-organized 5th meeting of the EBMT Paediatric Nurses. Thank you again Dear Eugenia.

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Mihaela Hartmann, St. Anna Kinderspital, Vienna

Island of Rhodes - More beautiful than the sun… 
This was the advertising slogan of the antique Rhodes where the 10th Meeting of the EBMT Paediatric Diseases Working Party and the 5th Meeting of the EBMT Paediatric Nurses was held in May.

As a nurse from the St. Anna Children Hospital, Vienna, I’m really thankful, that I had the possibility to attend to the Meeting. It is one of the few opportunities in the field of paediatric stem cell transplantation to get in exchange with nurses and doctors from other European transplantation centres. The advantage of this Meeting is that it is small and manageable and so leads to a pleasant atmosphere where the exchange takes place continuously. The scientific program was well chosen. All relevant topics of patient care during and after transplantation were included. New knowledge, latest developments were imparted and a lot of personal friendships arose.

Also the local organizing committee did a really nice job. Everything was included: nice Meeting location, good local food, a little bit of sightseeing and of course the seaside and the sun.

The Meeting was a package for body, soul, and spirit! Thank you!
 
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