New expanded MED-A is up and running
15th Meeting of the Data Management Group
Donor data needed for new Donor Outcomes Registry new MED-A has been successfully implemented in the Registry database. The new data collection form brings the following changes and benefits:
Other main structural changes
Timeline for MED-BThe next step is to adapt the MED-B to incorporate the new MED-A fields and structure. MED-B users should continue with the MED-B in its current format until further notice. We aim to fully implement the MED-A compatible MED-B in Spring 2016.
SupportThank you to all centres who have been reporting using the new MED-A since its launch in December 2015. We are very grateful for your help and time in becoming more familiar with the new structure.
Although the new MED-A items have been finalised, we are making minor improvements to the form on a regular basis and would encourage users to always download the latest version of the forms and manuals from our web page.
The MED-AB manual is under review, and will be updated regularly with the help of the EBMT Definitions Group.
The User Guide to ProMISe 3 is also under review to ensure it is compatible with the latest MED-A and ProMISe version. Education & Training at EBMT 2016 in Valencia will include the new MED-A, and more info on the Data Management Sessions is included below
The Information Analyst in the Registry Office, Babatunde Oyenuga, is working on a module to enable us to work with form sections. When this is available, we hope to reduce some pages and printing for paper form users.
As always, if you have any questions regarding the data or database please contact us at email@example.com
The EDUCATION SESSIONS are open to everyone and will aim to improve your knowledge of the field of Data Management. The sessions will be of interest to everybody, regardless of your background area. Some sessions will have a scientific content and some will have a more general theme. We very much encourage active participation in sessions, raising issues and requesting clarifications so that we can all learn from each other. Click here to view the online programme.
We will also be offering practical training sessions for the EBMT REGISTRY DATABASE (ProMISe) in: Data Entry, Data Retrieval, HLA Data Entry and Exports & Sharing Reports. Please register in advance for these training sessions via the Data Management Education section of the EBMT web site.
*** survey ***This survey also contains a question regarding autologous settings
EBMT has implemented a platform for a Donor Outcome Registry in the EBMT ProMISe database. There are, at this moment, several proposals that could support EBMT in setting up this important initiative.
Therefore we want to ask you to please complete a few questions in the Donor Outcome Registry Survey that will help us assess the feasibility of the different projects as well as estimate the general interest in completion of the donor registry.
The link below will take you to the survey:
The survey consists of three parts. It starts with general questions on products used for mobilisation in healthy donors, followed by questions specific to the biosimilars Accofil and Nivestim. The survey ends with a few more general questions. Parts of the survey may be skipped when questions are irrelevant to your situation.
We would appreciate to receive your response at your earliest convenience.
Should you have any questions or concerns, please do not hesitate to contact us via firstname.lastname@example.org
Jörg Halter - Chair Donor Outcomes Committee
Nicolaus Kröger - Chair Scientific Council
Anna Sureda - Secretary Executive Committee
EBMT Registry Office London